I woke up this morning excited about discovering Cam's favorite putt-putt course in Myrtle Beach is actually handicap accessible (something I never had to look for before) and as EJ and I were thinking about when we could go, we heard him over the monitor crying in pain. Being as Cameron is a child who NEVER complains, when he does, it is for a reason. So today has been a really tough day. He's had a lot of pain, not really in his head but in his lower back and left leg. We are assuming there is swelling/pressure on his spinal cord which is delivering the agonizing pain. We've again thrown the arsenal of pain meds at him without much relief. He's been a bit nauseated today as well so that complicates things a little more. If we cannot get things under control, we may end up at Duke for IV meds. Praying it doesn't come to that.
But as always, in the midst of such a day, there comes a "Cam story". At one point, he woke up insisting that we go to Hallmark because the new Christmas ornaments came out today. How can we deny such a request. So we jumped in the car, puke bucket in tow, and headed to Hallmark. He started feeling bad while we were there but he got his ornaments. :-) And you know what, I think we might put our Christmas tree up tomorrow. The neighborhood may think we are crazy but I don't care; if it makes Cameron happy, we are going to do it.
2 comments:
Hope you are putting your tree up today. :) What a sweet story! Who cares what anyone else thinks!
Praying for pain relief for Cam and some rest for you all.
We love you guys - the Ownbeys
Christmas in october... awesome!! love love love it.
Post a Comment